Confusion about celiac disease can delay diagnosis, make symptoms worse, and cause unnecessary stress for individuals living with this problematic digestive disorder. That’s about 2 million Americans, according to estimates.
Our team at Hudson River Gastroenterology in New York, led by gastroenterologist Dr. Prem Chattoo, often sees patients who are confused about what celiac disease really is, how it’s diagnosed, and what living with it requires.
Here, we clear the air by debunking five common myths about celiac disease.
Fact: Celiac disease is not an allergy or a food intolerance. It’s an autoimmune condition. When someone with celiac disease eats gluten (a protein found in wheat, barley, and rye), their immune system mistakenly attacks the lining of the small intestine.
This damage interferes with nutrient absorption and can lead to long-term health complications such as anemia, osteoporosis, infertility, and an increased risk of certain cancers if left untreated.
Unlike a food allergy, there’s no risk of anaphylaxis, but the damage is serious and ongoing if gluten isn’t removed from the diet.
Fact: While classic symptoms include bloating, diarrhea, gas, and abdominal pain, many patients experience nondigestive symptoms or no symptoms at all.
Fatigue, unexplained weight loss, skin rashes, joint pain, mouth ulcers, and sometimes depression are linked to celiac disease. Some people are diagnosed after years of subtle issues, while others are found during screening for related conditions like Type 1 diabetes or thyroid disease.
If you suspect celiac disease, don’t wait for digestive problems to appear before talking to your doctor.
Fact: Going gluten-free is the only treatment for people with celiac disease, but that doesn’t mean it’s automatically healthy for everyone else.
Gluten-free packaged foods can be high in sugar and fat while lacking fiber, iron, and B vitamins. For individuals without celiac disease or nonceliac gluten sensitivity, cutting gluten may not provide any health benefits.
In fact, it could make it more difficult to obtain essential nutrients. If you think you may have celiac disease, don’t start a gluten-free diet on your own before testing, as this can interfere with accurate diagnosis.
Fact: Blood tests are an important first step, but they’re not the whole story. A diagnosis usually requires both blood work and a biopsy of the small intestine to confirm intestinal damage.
In some cases, genetic testing may be helpful. It’s also critical to continue eating gluten during testing, as removing it too early can lead to false results. Working with a gastroenterologist ensures that you receive an accurate diagnosis and the appropriate long-term care.
Fact: Unlike some childhood food allergies, celiac disease is lifelong. Once diagnosed, children must follow a gluten-free diet for life.
With proper management, kids can thrive, grow, and live healthy, active lives, but there’s no “outgrowing” the condition. Education and support for both the child and their family are essential to ensure long-term health.
Celiac disease is more than just avoiding bread or pasta. It’s a complex autoimmune condition that requires accurate diagnosis and lifelong management.
If you suspect you or a loved one may have celiac disease, don’t rely on myths or internet trends. Schedule a visit with Dr. Prem Chattoo today. Call one of our New York offices or request an appointment online.
